Better2gether May News

Here’s this month’s newsletter filled with ways you – our community! – are making a difference in the lives of children with serious illnesses. We also have some upcoming needs and events where we’d greatly appreciate your support.

The 4th Annual Better2gether Golf Classic with presenting sponsor Call Federal Credit Union is taking place on May 16, 2024 at Magnolia Green Golf Course.  Your support and contributions will go a long way in providing crucial support services to kids facing serious illnesses. Whether you’re sponsoring, hitting the green, or grabbing a golf cart raffle ticket, you’re helping us say “Yes!” to more families in need.  The Online Silent Auction is Live today through May 17th at 12noon. See below for more information and check out all of the fantastic auction items and place your bid today!

Thank you for taking the time to read our newsletter!

Stephanie's Signature

Stephanie Becker
Executive Director & Co-Founder



Meet Kira: A Seven-Year-Old Adventure Enthusiast Defying the Odds with Better2gether

Snack Pantry Drive

Seven-year-old Kira loves to be outside! Whether she’s hiking with her family or visiting the beach, moving, swimming, and splashing are some of her favorite activities.

As a baby, Kira experienced seizures and experienced her first hospitalization at only 9 months of age. Thankfully, she has only had sporadic hospitalizations since gaining seizure control. However, Kira continues to attend frequent therapies including physical, occupational, and speech.

Kira and her family don’t let her many medical appointments slow them down. “Kira is very adventurous,” shares her mom, Olivia. “She loves new places and “daring” activities, like rollercoasters, four wheeling, and trotting when horseback riding. She is also very loving and gives excellent cuddles.”

“Even though Kira is nonverbal, she is very expressive and will let you know very clearly what she likes and doesn’t like!” mom adds.

One of the things that Kira especially loves is spending time with her younger sister, Lyla. “We didn’t know how she would feel about going from being an only child to having a baby around, but she was so gentle and sweet when we brought her baby sister home,” Olivia recalls. “She also has a very close bond with her “Savta” (grandmother) who is one of her caregivers.

Kira’s family is so grateful they learned about Better2gether when they moved to Richmond from another state. “Better2gether has given us the opportunity to connect with and build community in a new place and find out about resources for ourselves as parents, for Kira, and for our entire family,” say Stephanie and Olivia, Kira’s moms.

One program that was particularly meaningful was the Better2gether Self-Care Mental Health Retreat. “Attending the Retreat was a great way for us to connect with other parents in similar circumstances who understand our journey,” Stephanie recalls. “It enabled us to take time for ourselves to think about our own needs, which can be so difficult when our children’s needs are always the priority.”

“Kira lives a happy and fulfilling life,” Oliva shares. “She does all sorts of things that non-disabled children do — go to school, ride a bike, go camping, horseback riding, paddle boarding, and more! Just about any activity can be accessible if people are willing to make it so.”


Beyond the Diagnosis: Bringing Visibility to Rare Disease

Check out Beyond the Diagnosis where art meets science to raise awareness and inspire research for children with rare diseases. 

Step into the captivating world of the Beyond the Diagnosis art exhibit, where the power of art intersects with the lives of children facing rare diseases. This global initiative brings attention to many of the 7,000 known rare diseases, encouraging the medical community and the public to look beyond diagnoses and see the individuals behind them.

Better2gether is proud to collaborate with the Children’s Hospital of Richmond at VCU to present a traveling exhibit of original paintings highlighting children with rare diseases. This collaboration is a special opportunity to support medically complex kids and their families.

On April 17th, we celebrated the unveiling of a stunning painting by local artist Nathalie Godin of our very own Better2gether kiddo, Jack Phillips, at the CHOR Pavilion Sky Lobby. This exhibit is a testament to our commitment at Better2gether to ensure that children facing medical complexities feel supported and empowered, and now will include the portrait of Jack and his sister Charlotte.

Through the Beyond the Diagnosis exhibit, we aim to forge connections and strengthen our community’s bond with these extraordinary children. By shining a light on their stories and struggles, we hope to foster a sense of understanding and solidarity that goes beyond words.

Better2gether Hosted MOMENTS: An Evening of Support and Celebration for Families 

We were delighted to host MOMENTS, a special parent support group session, in partnership with the Children’s Hospital of Richmond at VCU (CHOR) as part of an evening of Beyond the Diagnosis recognition and celebration on April 17th. This unique event offered educational programming and open discussions for caregivers, providing a nurturing community during challenging times while fostering bonding and understanding among families.

This event underscored Better2gether’s commitment to creating a safe and supportive environment for families navigating the journey of caring for a medically complex child. Your generous support enables us to offer these critical resources and create moments of connection and empowerment for these families.

Together, let’s show these children and their families that they are not alone. Thank you for being a part of our mission to create a supportive community for kids with rare diseases.  Together, we’re driving positive change and creating a lasting impact!  Your ongoing support makes all the difference.

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Swing Into Action for a Cause: Join Us on May 16th for the 2024 Better2gether Golf Classic!

We invite you to join us on May 16th at Magnolia Green Golf Club for the 4th Annual Better2gether Golf Classic, presented by Call Federal Credit Union! This event promises a day of fun and fundraising as we come together to support children facing serious illnesses.

When you register to play, you’ll have a chance to tee off for the kids and support a great cause. Plus, don’t miss your chance to enter our raffle for a 2024 Evolution Classic 4 Pro Mineral White Golf Cart from Tiremax Powersports! It’s an exciting opportunity to win big while making a positive impact on the lives of brave kids and their families. Remember, you don’t have to be present to win so purchase your Golf Cart Raffle ticket today! But that’s not all—we’re thrilled to announce that our Online Silent Auction sponsored by NorthBank Partners will go live on May 1st! Get ready to bid on fantastic items and experiences, all while supporting our mission to provide vital services to children facing medical complexities. Anyone can participate and you don’t have to be present to win!

Your participation in the Golf Classic and the Online Silent Auction directly contributes to our work at Better2gether. We strive to offer essential support and resources to families navigating the challenges of serious illnesses.

Whether you’re sponsoring, hitting the green, or grabbing a raffle ticket, you’re helping us say “Yes!” to more families in need.  Visit today to register and learn more about how you can be part of this impactful day.  Don’t miss out! Sign up today!




Community Spotlight

Celebrating Reveille Weekday School’s Generosity: Making a Difference for Families Facing Complex Medical Challenges 

We are thrilled to recognize our collaboration with Reveille Weekday School and the incredible impact it has had on families facing complex medical challenges. Their generous food and snack donations have been a vital source of support for the families and kids at the Complex Care Clinic at Children’s Hospital of Richmond.

These contributions have made a tangible difference in the lives of children battling serious illnesses. We extend our heartfelt thanks to Reveille Weekday School for their steadfast commitment to our cause and their ongoing dedication to helping these brave kids and their families.

As the number of patients continues to grow, Better2gether regularly replenishes the toy and snack pantry at the CCC every 4-6 weeks. Your support is crucial in ensuring these important resources are always available for the children.

You can help by shopping our Amazon Wish List for toys and snacks. Your contribution will make a meaningful difference in brightening the days of young patients and their families. Click below to shop now and support our cause. Thank you for your generosity!



Celebrate the 3rd Annual Inclusion Day at the Diamond on May 19th!

Exciting News! Friendship Circle of Virginia is hosting the 3rd Annual Inclusion Day at the Diamond on Sunday, May 19th, 2024! This is a day of celebrating disability inclusion and mental health awareness at one of Richmond’s most iconic venues.

Friendship Circle of Virginia (FCVA), a 501c3 non-profit, is dedicated to creating an inclusive community by connecting people with and without disabilities through meaningful social experiences. We embrace everyone’s uniqueness and believe every person is a valuable part of our community.

The goal of Inclusion Day at the Diamond is to promote an inclusive community by bringing together people of all abilities for an unforgettable day at the ballpark. Better2gether families and kids will enjoy America’s pastime and make memories in a supportive, welcoming environment.

Better2gether supports families with children facing medically complex and rare diseases. Our mission is rooted in promoting disability inclusion, and we’re thrilled to be a community partner of this special event.


Voting is still open for the Conquest Graphics Non-profit Grant Program. Vote for Better2gether!

Conquest Graphics in Richmond initiated a Nonprofit Grant Program to aid non-profit organizations in their community endeavors. Understanding the significance of nonprofits in addressing community needs, the program aims to lessen the financial burden associated with print and direct mail services. For organizations like Better2gether, spreading their message, promoting services, and raising awareness of their mission is vital. Through the Conquest Graphics Grant Program, nonprofits can submit their use cases, detailing how they utilize print and direct mail to further their missions. Grants are then awarded to deserving organizations, providing discounted printing services to support their communication efforts.  Registered organizations receive a year-round 10% discount on printing services. We’re thrilled to be part of this opportunity! Click “VOTE for B2G” below to view our submission and support Better2gether!



You can provide resources to a family caring for their child with a serious illness. Here’s how your gift will help: