We’re a little behind getting our monthly newsletter out as we’ve been busy managing BIG needs, including a surge of new families who are reaching out for assistance in caring for their child with a serious, lifelong illness. I know you understand – and likely didn’t even notice the belated […]
Joshua
When 11-year-old Joshua was born, he had multiple medical complications and needs and was diagnosed before birth with a rare genetic disorder caused by a deletion of the distal long arm of Chromosome 22, or by a pathogenic variant in the Shank 3 gene, called Phelan-McDermid Syndrome (PMS). Individuals with […]