Moments that Matter

Hi everyone, it’s November, which means the clocks have changed, the leaves are falling and its National Family Caregivers Month!

We’re recognizing this special month by honoring Better2gether caregivers of children with serious illnesses. One of the ways we strive to support our caregivers is to provide them with a safe, nurturing, and supportive community for those many defining MOMENTS they experience while caring for their child.

For Laura Barker, attending Moments Support Group was one of the first things she did after learning about Better2gether. Laura’s son, Daniel, has Down syndrome and several co-occurring conditions, including being dependent on oxygen for sleep.

“When your child has medical challenges, it can create some of the biggest needs in your life,” reflects Laura. “It can be really challenging to find people who have similar experiences. I really enjoy access to experts that can speak to my situation, as well as the brain trust of information from the group members. Meeting people who really see you and can encourage you in specific ways because they have been in your shoes is invaluable.”

Moments Support Group used to meet in person but moved to an online format during the pandemic which turned out to be the right fit. Because our families’ lives are busy and full, having Moments online provides the flexibility needed to connect with others online.

“Online format is key for this group,” notes Laura. “It can be very difficult to figure out time away. The online meetings take away that hurdle. I was initially hesitant to attend because I was nervous that it would be too emotional. In reality, there are a lot of laughs and positive energy.” 

Caring for a medically complex child can be daunting for families. Your support provides them with resources and a caring team they can count on. Thank you for helping our families!

Gratefully yours,
Stephanie Becker
Executive Director