Beyond the Diagnosis: Bringing Visibility to Rare Disease
Check out Beyond the Diagnosis where art meets science to raise awareness and inspire research for children with rare diseases.
Step into the captivating world of the Beyond the Diagnosis art exhibit, where the power of art intersects with the lives of children facing rare diseases. This global initiative brings attention to many of the 7,000 known rare diseases, encouraging the medical community and the public to look beyond diagnoses and see the individuals behind them.
Better2gether is proud to collaborate with the Children’s Hospital of Richmond at VCU to present a traveling exhibit of original paintings highlighting children with rare diseases. This collaboration is a special opportunity to support medically complex kids and their families.
On April 17th, we celebrated the unveiling of a stunning painting by local artist Nathalie Godin of our very own Better2gether kiddo, Jack Phillips, at the CHOR Pavilion Sky Lobby. This exhibit is a testament to our commitment at Better2gether to ensure that children facing medical complexities feel supported and empowered, and now will include the portrait of Jack and his sister Charlotte.
Through the Beyond the Diagnosis exhibit, we aim to forge connections and strengthen our community’s bond with these extraordinary children. By shining a light on their stories and struggles, we hope to foster a sense of understanding and solidarity that goes beyond words.
Better2gether Hosted MOMENTS: An Evening of Support and Celebration for Families.
We were delighted to host MOMENTS, a special parent support group session, in partnership with the Children’s Hospital of Richmond at VCU (CHOR) as part of an evening of Beyond the Diagnosis recognition and celebration on April 17th. This unique event offered educational programming and open discussions for caregivers, providing a nurturing community during challenging times while fostering bonding and understanding among families.
This event underscored Better2gether’s commitment to creating a safe and supportive environment for families navigating the journey of caring for a medically complex child. Your generous support enables us to offer these critical resources and create moments of connection and empowerment for these families.
Together, let’s show these children and their families that they are not alone. Thank you for being a part of our mission to create a supportive community for kids with rare diseases. Together, we’re driving positive change and creating a lasting impact! Your ongoing support makes all the difference.
