Better2getherRVA

Better2gether April News

Better2gether April News

We’re a little behind getting our monthly newsletter out as we’ve been busy managing BIG needs, including a surge of new families who are reaching out for assistance in caring for their child with a serious, lifelong illness. I know you understand – and likely didn’t even notice the belated […]

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Joshua

Joshua

When 11-year-old Joshua was born, he had multiple medical complications and needs and was diagnosed before birth with a rare genetic disorder caused by a deletion of the distal long arm of Chromosome 22, or by a pathogenic variant in the Shank 3 gene, called Phelan-McDermid Syndrome (PMS). Individuals with […]

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B2g News: 9 New Families

B2g News: 9 New Families

We are rolling! Over the past few weeks, nine families have reached out seeking support in caring for their medically complex child, and we are hustling to onboard them as quickly as possible. We know every child and family faces unique challenges, and the best way to support them is […]

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Better2gether: it’s BIG!

Better2gether: it’s BIG!

We recently surveyed our families for feedback on our programming and to understand their current challenges. Here are a few stats that caught our attention: 76% want community, connection, and friendship with other B2g families 62% are looking for play opportunities for their children (siblings too!) 66% share that there is […]

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Desiree

Desiree

The name “Desiree” means “the desired one.” For (almost) ten-year-old Desi, this name is incredibly fitting. From Desi’s first anatomy scan during her mom Alisha’s pregnancy, the doctors expressed serious concerns about her health and well-being. But Alisha remained determined to bring Desi into the world. When Desi was born, […]

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We’ve got big big energy!

We’ve got big big energy!

I hope your 2023 is off to a great start!  While we’re only two weeks into the new year…  whoa, it already feels like a fantasy! We’ve been dreaming big for some time about how to do more for our kids and families, and now we’re making those dreams come […]

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Help Support Better2gether Families this Holiday Season!

Help Support Better2gether Families this Holiday Season!

MOMENTS that Matter Hi everyone, it’s November, which means the clocks have changed, the leaves are falling and its National Family Caregivers Month! We’re recognizing this special month by honoring Better2gether caregivers of children with serious illnesses. One of the ways we strive to support our caregivers is to provide them with a safe, […]

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Mustaches & Ghosts, oh my!

Mustaches & Ghosts, oh my!

MEET KID CHAMPION AIDAN-THOMAS! Yesterday we shared on our Better2gether social media channel a heartfelt interview with Aidan-Thomas Smith and his mother, Miriam Smith. They were interviewed by Sabrina Shutters, ABC8 News. You can watch the interview to see Aidan in action and to hear his sweet song at the end, “You always […]

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