Champions

When 11-year-old Joshua was born, he had multiple medical complications and needs and was diagnosed before birth with a rare genetic disorder caused by a deletion of the distal long arm of Chromosome 22, or by a pathogenic variant in the Shank 3 gene, called Phelan-McDermid Syndrome (PMS). Individuals with […]

The name “Desiree” means “the desired one.” For (almost) ten-year-old Desi, this name is incredibly fitting. From Desi’s first anatomy scan during her mom Alisha’s pregnancy, the doctors expressed serious concerns about her health and well-being. But Alisha remained determined to bring Desi into the world. When Desi was born, […]

Likes: Cash loves all things Mickey Mouse. He loves watching Mickey Mouse Clubhouse and his favorite episode is the Super Hero one. His mom says, “If he’s awake, Mickey Mouse is on!” Dislikes: Since Cash doesn’t like things going in his mouth, toothbrushing is one of his least favorite activities. […]

Likes: Music, swings, baths and playing with her big sister, Finley. Dislikes: All things medical: shots, blood draws and other medical procedures. Hospitalizations: She underwent her first surgery at a month old with three different teams of surgeons. She spent the first three months of her life in the hospital. […]

Likes: Coloring, playing with playdough, having others read stories to her, riding her bike and power wheel, going to pre-k, and watching YouTube kids and Disney+. Her favorite color is purple. Dislikes: Shots, blood draws and oxygen in the nostrils. She does not like to eat meat, unless its chicken […]

Likes: Cars, trucks and trains – basically anything with wheels! Music – he loves to sing and attempts to play several musical instruments. Being outside. Soccer is his sport. Foods vary a lot but right now, pancakes, pizza, cake, yogurt, and chicken “muggets”. Dislikes: adult directed activities, most meat and […]

Likes: Trains, cars, playing at a playground, snuggling with his sister, building with Legos, watching movies, taking a bath, splashing in the pool and trips to Target Favorite Animal: his bunny rabbit that he sleeps with at night Dislikes: pork chops, hospital visits, settling down at bedtime, waiting patiently for […]

Likes: Reading, playing with friends, music Favorite Animal: Zebra (this is new, but I asked him) Dislikes: trying new foods, tags in his clothes, undue attention Hospitalizations: NICU at birth 60 days, 2 admission for respiratory virus Clinics Visited: Pulmonology, Allergy & Immunology, Endocrinology, Gastroenterology, Otolaryngology, Rheumatology, Infectious Disease, Cardiology, […]

Likes: more like LOVES <3 school, PJ MASK, music, YouTube, watermelon, lacrosse, and Randolf Macon Favorite Animal: (stuffed) her orange Panda Petey Bear and Gekko from PJ Mask (real) pandas and elephants Dislikes: eating, chewing, trying new foods, being told no Hospitalizations: NICU in Greensboro, NC at Moses Cone Women’s […]

Likes: Cars, trucks and trains – basically anything with wheels! Music – he loves to sing and attempts to play several musical instruments. Being outside. Soccer is his sport. Foods vary a lot but right now, pancakes, pizza, cake, yogurt, and chicken “muggets”. Favorite Animal: Dogs – he loves his Great […]